Chicago Lupus Walk!

There’s going to be a Lupus walk in Chicago organized by the Lupus Foundation of America’s Illinois Chapter!  Well, 2 actually: one downtown in Grant Park (Saturday, Oct 2nd) and one in the Western Suburbs (Sunday, Oct 3rd).

This event is a fundraiser for lupus research and also a public awareness initiative.  I found a statistic from another lupus walk website – Lupus Research – one that already happened this summer, that said 2/3 of the public don’t know anything about lupus!  This is astounding!

I am going to register a team this year for at least one, maybe two!  If you would like to join my team, contact me!  meredith [dot] kooi [at] gmail [dot] com

If you would like to register as an individual or create your own team, click here.

Lady Gaga has lupus?…

In an interview Lady Gaga gave on Larry King Live, it came out that she might have lupus.  Supposedly it runs in her family and she shows signs of it – fatigue – and i’m guessing maybe she shows autoantibodies in her blood.

Click here to read an LA Times blog about the interview – it contains a statement from the Lupus Foundation about the issue of being according to Lady Gaga “borderline” positive.

Click here for a video of the interview.

Lupus can take on average 4 years and 3 doctors to diagnose – me, i’m at 1.5 years about and 3 doctors, so… Also, there hasn’t been a drug made or approved for lupus for about 50 years!  Yep, those of us who are living with the chronic illness have to rely on steroids and anti-malarial drugs, which for some reason help manage lupus symptoms.  We call it our “maintenance drug.”  Maybe this can change though with enough public awareness and outreach.  If Lady Gaga could use her popularity and fan count, maybe something could happen with the dismal state of lupus research.